Pa. girl who took on donor rules gets transplant
By Associated Press
Jun 12, 2013 10:42 AM CDT
FILE - In this May 30, 2013 file photo provided by the Murnaghan family, Sarah Murnaghan, center, celebrates the 100th day of her stay in Children's Hospital of Philadelphia with her father, Fran, left, and mother, Janet. The national organization that manages organ transplants on Monday June 10, 2013...   (Associated Press)

A 10-year-old girl whose efforts to qualify for an organ donation drew public debate over how donated lungs are allocated was getting a transplant Wednesday, her family said.

Sarah Murnaghan, who suffers from severe cystic fibrosis, was receiving the transplant Wednesday at Children's Hospital of Philadelphia, a family spokeswoman said.

Her health was deteriorating when a federal judge intervened on June 5, giving her a chance at the much larger list of organs from adult donors.

The case could bring change for other children, as another cystic fibrosis patient at the same hospital has also gone to court to be added to the adult donor list. The Organ Procurement and Transplantation Network says 31 children under age 11 are on the waiting list for a lung transplant.

Murnaghan's mother, Janet, said in a Facebook post that the family was "overwhelmed with emotions" and thanked all her supporters.

"Today is the start of Sarah's new beginning and new life!" she wrote.

Last week, federal Judge Michael Baylson in Philadelphia ruled that Murnaghan of Newtown Square, Pa., and 11-year-old Javier Acosta of New York City should be eligible for adult lungs.

Their families challenged existing transplant policy that made children under 12 wait for pediatric lungs to become available or be offered lungs donated by adults after adolescents and adults on the waiting list had been considered. They said pediatric lungs are rarely donated.

It was not immediately clear where Murnaghan's donation came from. A message was left for a hospital representative.

Janet Murnaghan said the donor's family "has experienced a tremendous loss, may God grant them a peace that surpasses understanding."

Critics warn there could be a downside to having judges intervene in the organ transplant system's established procedures. Lung transplants are difficult procedures and some say child patients tend to have more trouble with them than adults.

The national organization that manages organ transplants this week resisted making emergency rule changes for children under 12 who are waiting on lungs but created a special appeal and review system to hear such cases.