'Bucket List' Baby Dies

5-month old Avery Canahuati had genetic disease

By Rob Quinn,  Newser Staff

Posted May 2, 2012 4:15 AM CDT

(Newser) – A baby whose "bucket list" blog was read by millions of people around the world has died at the age of just 5 months. Avery Canahuati's parents created the blog after learning their daughter had the incurable genetic disease spinal muscular atrophy and was not expected to survive past 18 months, CNN reports. In her final weeks of life, she managed to cross items off the list including playing with a puppy, throwing the first pitch at a baseball game, and getting a (fake) tattoo.

"Avery's passing this quickly came as a complete shock to all of us, as she had just been given a thumbs-up at her last doctor's appointment only three days ago," her father wrote on the blog. "While we were aware of the severity of her diagnosis, we never lost hope for Avery and even in her passing, we still have hope for our daughter and all of her friends." SMA, which affects around one in 6,000 babies, is the leading cause of death in American children under two. Avery's parents say they plan to keep working to spread awareness of the disease and raise money for finding a cure.

'Dress ridiculously over the top' was crossed off Avery's bucket list.   (averycan.blogspot.com)
Avery Canahuati's parents only learned just before Easter that their daughter had the disease.   (averycan.blogspot.com)
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