'Bucket List' Baby Dies
5-month old Avery Canahuati had genetic disease
By Rob Quinn, Newser Staff
Posted May 2, 2012 4:15 AM CDT
'Dress ridiculously over the top' was crossed off Avery's bucket list.   (averycan.blogspot.com)

(Newser) – A baby whose "bucket list" blog was read by millions of people around the world has died at the age of just 5 months. Avery Canahuati's parents created the blog after learning their daughter had the incurable genetic disease spinal muscular atrophy and was not expected to survive past 18 months, CNN reports. In her final weeks of life, she managed to cross items off the list including playing with a puppy, throwing the first pitch at a baseball game, and getting a (fake) tattoo.

"Avery's passing this quickly came as a complete shock to all of us, as she had just been given a thumbs-up at her last doctor's appointment only three days ago," her father wrote on the blog. "While we were aware of the severity of her diagnosis, we never lost hope for Avery and even in her passing, we still have hope for our daughter and all of her friends." SMA, which affects around one in 6,000 babies, is the leading cause of death in American children under two. Avery's parents say they plan to keep working to spread awareness of the disease and raise money for finding a cure.

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May 2, 2012 10:05 AM CDT
Deepest sympathy to Avery's family. She was a little cutie who had a lot to live for, unfortunately she was taken way too soon.
May 2, 2012 9:24 AM CDT
My deepest sympathy go out to the parents, and everyone close to Avery. I cried, and I'm not ashamed to say it.
May 2, 2012 8:59 AM CDT
When a child dies, the parents join an exclusive club that no one wants to belong to. My daughter was schizophrenic and died 14 years ago at age 29 from a combination of ant-psychotic medicine and alcohol. It is a pain that goes beyond grief, as if someone had reached down inside you and torn out a piece of your soul. Deepest sympathies to the grieving parents and experience tells me that one does not "get over it", but we somehow manage to learn to accept it and live with it. In the natural order of things, kids are to bury us and not the other way around.