Lou Gehrig's disease

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Ice Bucket Challenge Funds 'ALS Breakthrough'

Gene tied to the disease has been identified

(Newser) - The $115 million raised from 2014's Ice Bucket Challenge for the ALS Association's research and services helped fund what's now being called an "ALS breakthrough," per the Guardian : the ID of a gene linked to the disease, also known as Lou Gehrig's disease, which... More »

She Raised $800K for Those Battling ALS. Now She's One of Them

'I hope that my story will inspire others'

(Newser) - Over seven years, Virginia's Beth Prever raised $800,000 for ALS research because she "felt like having ALS would be a worst-case scenario diagnosis. It's like living in a glass coffin—your mind is intact, but your body is failing," she tells People . She now understands... More »

How Has Stephen Hawking Lived With ALS for 52 Years?

Experts call the 73-year-old physicist's long-term survival 'extraordinary'

(Newser) - An ALS patient's life expectancy averages just two to five years after diagnosis, and only about 5% make it past 20 years, the ALS Association notes. But Stephen Hawking, the 73-year-old theoretical physicist and subject of an Academy Award-winning biopic , has beaten the odds and lived with his motor... More »

Ice Bucket Challenge Co-Founder Dead at 27

Corey Griffin jumped from building into Nantucket Harbor

(Newser) - One of the masterminds behind this summer's Ice Bucket Challenge died early Saturday in Nantucket. Police say Corey Griffin, 27, dove off the Juice Guys building into the harbor around 2am, floated to the surface briefly, then sank, the Boston Globe reports. An off-duty lifeguard tried to rescue Griffin... More »

Ice Bucket Challenge Gets Presidential

George W. Bush passes torch to Bill Clinton

(Newser) - The Ice Bucket Challenge is now claiming former heads of state as victims. But former President George W. Bush didn't really want to have a bucket of ice water dumped on his head. "I do not think it's presidential," he says in a video posted today... More »

'Ice Bucket Challenge' Helps Raise $13M for ALS

But some question its fundraising methods

(Newser) - In the few weeks since July 29, the ALS Association has gotten more than $13 million in donations. Over the same period last year, that figure was around $1.7 million, the New York Times reports. The big difference, of course, is the " Ice Bucket Challenge ," which calls... More »

Ice Bucket Challenge Gets High-Profile Victim: Christie

NJ gov gets soaked, ALS raises awareness

(Newser) - Chris Christie is the latest to take the ALS Ice Bucket Challenge : The NJ governor posted a video on Facebook yesterday of his two youngest kids, Bridget and Patrick, gleefully soaking him to raise awareness for Lou Gehrig's disease. If you've been on social media at all over... More »

Company Pulls Drug for Lou Gehrig's Disease

Biogen ends development after it fails drug trial

(Newser) - An experimental drug that showed promise of becoming the first effective treatment for Lou Gehrig’s Disease is being pulled by its manufacturer because it performed miserably in a major drug trial. Biogen says its drug, dexpramipexole, did nothing to improve the condition of patients or extend their lives, reports... More »

Lawmakers Push to Open Medical Records of Lou Gehrig

Mayo Clinic resists on privacy grounds

(Newser) - Should Lou Gehrig's medical records be unsealed? Some lawmakers in Minnesota think so, and they hope to force the Mayo Clinic to do just that, reports the Minneapolis Star Tribune . The state legislator leading the charge says it could resolve an intriguing theory raised in a 2010 study—that... More »

NFL Players' Alzheimer's Risk Skyrockets

Or at least it looks that way; it might be CTE

(Newser) - This is going to shock you, but it turns out that repeatedly bashing your head playing football makes you more likely to develop mental problems—a lot more. Ex-NFL players are four times as likely to die of Alzheimer's or ALS (Lou Gehrig's Disease) as other men their... More »

A Sick Doctor Shines Light on Assisted Suicide

Richard Wesley: typical of those who consider an early death

(Newser) - The slow degeneration of a Seattle doctor is sad to see, but his plight shines a spotlight on surprising facts about assisted suicide, the New York Times reports. Richard Wesley, stricken with Lou Gehrig's disease, has only a short time to live—but thanks to Washington state's Death... More »

Intel Trying to Help Stephen Hawking Speak

70-year-old cosmologist losing ability as facial nerves deteriorate

(Newser) - Computer chip-maker Intel is hunting for a new technology to help Stephen Hawking communicate better, reports AP . The 70-year-old scientist currently uses a device that runs pulses in his right cheek through a voice synthesizer, but his facial nerves have deteriorated to the point where he can speak only about... More »

Ill Stephen Hawking Misses 70th Birthday

Scientist was released from hospital on Friday

(Newser) - The University of Cambridge says renowned physicist Stephen Hawking isn't well enough to attend a conference held to celebrate his 70th birthday . Hawking's remarkable career is being honored today as part of a daylong conference on cosmology being hosted at the university. But the celebrity scientist, who suffers... More »

Stephen Hawking Turning 70

He has survived half-a-century with Lou Gehrig's disease

(Newser) - British scientist Stephen Hawking has decoded some of the most puzzling mysteries of the universe, but he has left one mystery unsolved: How he has managed to survive so long with such a crippling disease. The physicist was diagnosed with Lou Gehrig's disease when he was a 21-year-old at... More »

Stephen Hawking Talks Health Care, ALS, and Life

Physicist offers advice for living with disability

(Newser) - When you can only speak by twitching your cheek toward words flitting past your screen, you don’t tend to do a lot of interviews. But Stephen Hawking sat down with the New York Times last month to talk about his life, aliens, and health care. Some highlights:
  • On aliens:
... More »

Lou Gehrig May Not Have Had Lou Gehrig's Disease

Study: ALS is sometimes misdiagnosed

(Newser) - A new study has found that some patients diagnosed with ALS actually suffered from a different fatal disease that affects the central nervous system—and implies that Lou Gehrig himself may not have had ALS, also known as Lou Gehrig's disease. The study's review of the spinal cords of three... More »

VA Mistakenly Tells Hundreds of Vets They Have ALS

'Coding error' to blame for ALS mistake

(Newser) - Because of an error, the Department of Veterans Affairs incorrectly notified 1,200 veterans they had ALS, the fatal neurological condition also known as Lou Gehrig’s disease, the AP reports. The letters alerted the veterans to disability benefits available to those who suffer from the disease. Thought the VA... More »

Dying Doc: Don't Keep Me Alive

ALS patient explains why he chooses quality of life over quantity

(Newser) - Martin Welsh considers himself a lucky man, with a loving family and innumerable friends. “Life has been truly wonderful,” the 55-year-old doctor writes in the Los Angeles Times. But soon, that life will end, and he doesn’t want his doctors to do anything to prolong it. Welsh... More »

MLB Fetes Gehrig's 'Luckiest Man' Speech at 70

(Newser) - Major League Baseball will honor the 70th anniversary of Lou Gehrig’s “luckiest man” retirement speech tomorrow, part of a campaign against the disease that now bears his name, the Newark Star-Ledger reports. “It’s one of the great moments in American sports and, arguably, American popular culture,... More »

ALS Patient Chronicled Her Struggle, Chose Her Death

'I choose not only how I will live, but if I will live'

(Newser) - When writer Catherine Royce became an ALS patient, she shared with NPR her passionate belief that she should be able to meet her decline and eventual death on her own terms. "Every day, I choose not only how I will live, but if I will live," she said... More »

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