Juvenile Batten disease

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Utah Parents Bury 3 Kids, Lost to Same Disease, on Same Day

Juvenile Batten disease is a cruel disorder, as the Chappells have learned

(Newser) - As far as diseases go, Juvenile Batten disease is a particularly cruel one: Vision issues and seizures typically emerge before a child is 10; blindness, dementia, and an inability to move can follow; death often comes within a decade. Crueler still, while the disorder is highly rare it's also... More »

Parents Losing Both Sons to Rare Brain Disease

There's no cure for Batten disease, and it's fatal

(Newser) - Batten disease, a rare and fatal genetic brain disease marked by blindness, seizures, dementia, and loss of motor skills, gained attention earlier this year when Hollywood producer Gordon Gray and his wife Kristen learned that both their young daughters have it, reported Deadline in June. Now another California couple, Bekah... More »

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