terminal illness

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Family Fights to Save Boy With 'Childhood Alzheimer's'

Carter Sarkar's family is trying to raise $1 million in one month for Sanfilippo syndrome research

(Newser) - During a visit to the doctor for chronic pancreatitis in 2016, the gastroenterologist suggested to Jennifer Sarkar that she take her son, Carter, to see a geneticist because he was not yet potty-trained. "After 30 seconds [the geneticist] looked at him and said, 'He might have Sanfilippo syndrome,... More »

Congress Passes 'Right-to-Try' Drug Bill

Law will let terminally ill patients bypass FDA

(Newser) - A "right-to-try" bill that allows terminally ill patients to request medication that hasn't been approved by the Food and Drug Administration has passed Congress and is expected to be signed by President Trump. The bill, which passed the Senate last August, sailed through the House Tuesday with a... More »

Assisted Suicide Now Legal in a 6th State

Hawaii joins the list, which also includes California and Vermont

(Newser) - Hawaii became the latest state to legalize medically assisted suicide Thursday as the governor signed a measure into law allowing doctors to fulfill requests from terminally ill patients to prescribe life-ending medication. "It is time for terminally ill, mentally competent Hawaii residents who are suffering to make their own... More »

Mom Raised $40K for Son's Cancer Care. He Didn't Have It

Monika Burgett is accused of having her 3-year-old's eyebrows, head shaved in the ruse

(Newser) - A woman has been accused of pretending to be a doctor and falsely claiming her preschool-age son had terminal cancer so he could receive unnecessary hospital care and opioids. A Hamilton County prosecutor told jurors on Tuesday at the trial of Monika Burgett that she convinced doctors at Cincinnati Children'... More »

Charlie Gard's Parents Concede He Will Die in Hospital

Connie Yates requests medical team of her choosing for hospice care

(Newser) - The parents of critically ill infant Charlie Gard conceded Wednesday that he will die in a hospice and not at home as they had previously wished, the AP reports. Connie Yates, the mother of the baby at the center of an international medical and legal battle, returned to London's... More »

Woman Stuck in Alaska After Terminal Cancer Diagnosis

(Newser) - A couple who left on a two-week "trip of a lifetime" to see mountains and glaciers in Alaska in late April is now stuck in a hospital in Anchorage. Nancy and Paul Greathouse, who married later in life, had both recently retired after working for 40 years. This was... More »

Charlie Gard's Dad on Hearing Latest on Dying Baby: 'Evil!'

Brain scans on little Charlie said to be 'sad reading'

(Newser) - The British parents of critically ill baby Charlie Gard have been told by a hospital lawyer that the results of their son's latest brain scans make for "sad reading." Great Ormond Street Hospital lawyer Katie Gollop broke the bad news to Charlie's parents at a pre-court... More »

You Can Make Dying Army Vet's Wish Come True

Iraq veteran Lee Hernandez is taking phone calls from strangers

(Newser) - The wife of a military veteran suffering from a terminal illness is soliciting calls from strangers to brighten her husband's last days. Lee Hernandez, an 18-year Army veteran who served in Iraq, is dying of an undiagnosed medical condition in hospice care at his home in New Braunfels, Texas,... More »

NYC Hospital Says It Has 'Agreed to Admit' Charlie Gard

But 'legal hurdles' have to be cleared first

(Newser) - A New York City hospital says it has "agreed to admit and evaluate" Charlie Gard, the terminally ill British baby whose case has attracted the attention of Pope Francis and President Trump . New York Presbyterian Hospital and Columbia University Irving Medical Center says it can admit 11-month-old Charlie, provided... More »

Trump Wades Into Issue of Terminally Ill UK Baby

Says US 'would be delighted' to help Charlie Gard

(Newser) - President Trump is offering help to a terminally ill British baby. Trump tweeted Monday that "if we can help little #CharlieGard, as per our friends in the U.K. and the Pope, we would be delighted to do so." The White House did not immediately answer questions about... More »

Artist Takes Strangers' Tattooed Secrets to His Grave

Most of the secrets inked onto Andrew Henderson's body weren't even his own

(Newser) - Andrew Henderson knew he didn't have long to live due to his lymphoblastic lymphoma, which doctors told him was incurable. And so he held a "living funeral" last weekend, per the CBC , and the "Taking It to the Grave" event was a testament to the "ebullient... More »

Husband of Real Fault in Our Stars Couple Has Died

Dalton Prager was 25; wife Katie is in hospice

(Newser) - They've been likened to the fictional couple battling cancer in The Fault in Our Stars , and there will be no fairy tale ending for Dalton and Katie Prager. Instead of cancer, each had cystic fibrosis, and after striking up an online relationship seven years ago, they met in person... More »

She Raised $800K for Those Battling ALS. Now She's One of Them

'I hope that my story will inspire others'

(Newser) - Over seven years, Virginia's Beth Prever raised $800,000 for ALS research because she "felt like having ALS would be a worst-case scenario diagnosis. It's like living in a glass coffin—your mind is intact, but your body is failing," she tells People . She now understands... More »

Teen to Celebrate 'Last Dance' Before Ending Her Life

Jerika Bolen is going to prom before putting an end to the pain from her incurable illness

(Newser) - Jerika Bolen wakes up every morning with another day ahead of her hooked up to a ventilator and wracked by terrible pain, caused by an incurable illness that usually kills its sufferers when they're in their teens. But the purple-haired 14-year-old from Appleton, Wis., has decided to wrest control... More »

5-Year-Old Gets Her 'Heaven or Hospital' Wish, Dies at Home

Girl with terminal illness wanted to spend final days at home, not in a medical facility

(Newser) - It started with a conversation last year that Michelle Moon had with her terminally ill daughter, Julianna, about where she'd want to be if she got sick again: in the hospital or at home. Julianna picked home , even if it meant she'd die there, and that's where... More »

Star Wars Superfan Dies After Getting Final Wish

Daniel Fleetwood died of a rare cancer after private viewing of 'The Force Awakens'

(Newser) - Daniel Fleetwood, the Star Wars superfan with a terminal illness whose wish to see an advance screening of The Force Awakens came true last week, has died at the age of 32, Mashable reports. His wife, Ashley Fleetwood, announced the Texas man's death with a Facebook post early Tuesday,... More »

Girl, 5, Wants to Skip Hospital, Die at Home

Her parents say they will honor her choice

(Newser) - Michelle Moon has had some wrenching conversations with her daughter, Julianna Snow, who, at just 5 years old, is dying of an incurable disease. She's endured painful procedures and numerous hospitalizations during her battle with Charcot-Marie-Tooth, a neurodegenerative illness that has robbed her of the ability to walk, eat... More »

Dying Son's Birthday Wish: to Receive Mail

And it's pouring in for 8-year-old Bubby Everson

(Newser) - Bubby Everson is an 8-year-old boy with a simple birthday dream: to receive mail. He loves getting cards and especially stickers, which he'll play with and "put all over the place," his dad, Thomas Everson, tells Q13 Fox . His parents are asking people to send Bubby mail... More »

Brittany Maynard May Choose Not to Die Saturday

In new video, she explains she'll take her life when it feels right

(Newser) - When Sunday rolls around, Brittany Maynard could still be alive. The terminally ill 29-year-old, who has grabbed headlines in the last month over her decision to take medication to end her life on Saturday, has released a new six-minute video that explains she still plans to do so—but indicates... More »

Cancer-Stricken Dad, 86, Dies After Son Tries to Kill Him: Cops

Medical examiner hasn't ruled on official cause of death yet

(Newser) - Authorities in Ohio are trying to figure out whether a Florida man acted out of compassion, rage, or drunken recklessness when he allegedly tried to suffocate his 86-year-old terminally ill father in a Brecksville nursing home. Staff members at the facility say they walked in on an "intoxicated" Steven... More »

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